Tag: pacing

I’m so Excited

Pink Fish

Pink Fish

In 2012, through an odd series of “coincidences”,  I took a painting class from Flora Bowley.

A very good friend at that time, tricked me into signing up for Flora’s eclass.  I was very sick with fibro, lyme and CFS.  I had been in bed for over 20 years.

I was kind of doing art.  But I was just too sick to do much.  Making a phone call overwhelmed me.  Trying to be creative was impossible.

Then, I discovered the computer app I now use, Painter.  At that same exact time, Flora came into my life with her philosophy of life and art.  I had a positive outlook on life, but it had never occurred to me to apply that to my art.  Duh!

Flora has shared stories of her students  in her blog.  This week, she chose my story.

Click here to read the blog.  While you’re there, check out her fantastic art and be sure to check out her classes.  Be sure to click on “Shop” at the top.  She has fantastic products made from her art for sale.  Flora’s art or her classes make fabulous Christmas gifts.

A Wonderful Group That Helped Me

Untitled-03a

I was floundering trying to figure out how to live some kind of a life with FM.  I had spent most of my time in bed, and basically had no life.

One day while on the Internet, I came across a group called CFIDS & Fibromyalgia Self-Help.

This was truly an example of being led to help by God.  I never was much of a surfer on the Internet.  I was too sick.  But I know God led me to these people.

They teach small, on-line classes showing how to live a life with FM, CFS, etc.

They teach a concept of pacing yourself.  By pacing, I learned that I don’t go out and overdo and then crash for several weeks.  I learned to use what they refer to as an “energy envelope.”  Each day, I get up and decide, as best I can, how much energy I have in my envelope.  I then can figure out how much I energy I can spend on what I want to do that day.

If I’m able to be up and around, then I pace during the time I’m up out of bed.  I take lots of rests.  I do things in small bits of time.  Do something for 20 or 30 minutes, then rest.  If I recover, then do another 20 or 30 minutes.  By taking rests, I have found that I’m able to extend the amount of time I can stay out of the house.

I’ve also learned that I have limits.  Usually, I can easily do two hours out of the house.  But four hours is my absolute limit.

By pacing and resting, I have managed to put together a bit of a life.  I am so grateful for this group.

FM is so hard to live with.  No one really understands how sick I am.  Sometimes, not even my husband seems to understand.  (But, he is incredibly supportive most of the time.)  But the group of people I met in this class and now in the alumni group (which is free), I have met a wonderful, supportive and informative group of people who really know what I experience.

If you are feeling stuck and like your life is out of control, you may want to check this group out.  They also have a wonderful library of resources.

Click here to find them.

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