I’m going to talk about what it was like when I first got sick with Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM) and Lyme disease.
FM, CFS and Lyme disease are difficult illnesses to diagnose. When I first got sick in 1993, there was very little information for doctors or their patients about any of these diseases.
In 1993, my husband and I went to Mexico for Christmas. While there, I ate some raw vegetables and guess what, got really sick.
When I came home, I continued to not feel well. I was tired all the time, my head was cloudy and fuzzy and I could barely get myself to work. Work was awful. I couldn’t think, I was exhausted and the director was noticing.
The doctor I was seeing at this point knew I was sick, but didn’t have a clue what was wrong. However, he clearly saw I was exhausted and was giving me notes to my employer stating I was to take days off for rest. Finally, one day I went in to see the doctor, and he said I just couldn’t work anymore. I knew this in my heart. But to admit it out loud, to come to terms with it was overwhelming. I can’t work? What would I do for money? What would happen to me? What was wrong with me? Frightened and scared to death is all I can recall.
This doctor referred me to another physician.
Then the nightmare really began.