Yesterday, May 12, was the 22nd annual day to raise awareness of ME/CFS & FM.
The purpose of this day is to raise international awareness of these crippling diseases. You can find out more about this day on Facebook.
Everyone that could was to light up their home, business, building (themselves?) in these colors.
There are specific colors that are used, purple for FM, blue for ME/CFS and green for multiple chemical sensitivities.
Of course, there was no news coverage here or in Canada that I or my Canadian friends saw, except for a radio station in Salmon Arm, British Columbia.
My good friend, Jerre Pacquette, has a weekly radio show every Monday called What So What. It is broadcast on the radio station, Voice of the Shuswap. It is repeated every Thursday. It is an information show about health and eating well.
Yesterday, Jerre, had his show focus on this vitally important issue. His guest was one of my other very good friends, his wife, Carole Jeffries. Carole suffers from ME/CFS and FM. She has been so very sick, but is now some improved.
It was very brave of Carole to go on the radio and share her story. It is hard for all of us with these diseases to look back at the hell we went through before being diagnosed. Then the nightmares of trying to find adequate medical help. You all know what I’m talking about. No one believes you’re sick. Doctors are ignorant. Friends and family don’t understand. You don’t look sick, even though you feel like you’re dying.
So, although I didn’t blog about this yesterday, you, lucky readers, get another chance to listen to Carole’s story. The show will be repeated on Thursday at 4:00 PM, Pacific time.
You can link to it here.
Give it a listen. It also includes an excerpt from a mother testifying as to her two 20-something-year old sons’ trials with CFS. It is a powerful show and not to be missed.
The art is a little collage that I put together.