I was floundering trying to figure out how to live some kind of a life with FM. I had spent most of my time in bed, and basically had no life.
One day while on the Internet, I came across a group called CFIDS & Fibromyalgia Self-Help.
This was truly an example of being led to help by God. I never was much of a surfer on the Internet. I was too sick. But I know God led me to these people.
They teach small, on-line classes showing how to live a life with FM, CFS, etc.
They teach a concept of pacing yourself. By pacing, I learned that I don’t go out and overdo and then crash for several weeks. I learned to use what they refer to as an “energy envelope.” Each day, I get up and decide, as best I can, how much energy I have in my envelope. I then can figure out how much I energy I can spend on what I want to do that day.
If I’m able to be up and around, then I pace during the time I’m up out of bed. I take lots of rests. I do things in small bits of time. Do something for 20 or 30 minutes, then rest. If I recover, then do another 20 or 30 minutes. By taking rests, I have found that I’m able to extend the amount of time I can stay out of the house.
I’ve also learned that I have limits. Usually, I can easily do two hours out of the house. But four hours is my absolute limit.
By pacing and resting, I have managed to put together a bit of a life. I am so grateful for this group.
FM is so hard to live with. No one really understands how sick I am. Sometimes, not even my husband seems to understand. (But, he is incredibly supportive most of the time.) But the group of people I met in this class and now in the alumni group (which is free), I have met a wonderful, supportive and informative group of people who really know what I experience.
If you are feeling stuck and like your life is out of control, you may want to check this group out. They also have a wonderful library of resources.
Click here to find them.